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Your responses will be used by Merck KGaA, Darmstadt, Germany (the sponsoring pharmaceutical company) to inform the development of educational tools or publications. Your responses will be presented to the sponsor company in an aggregated and anonymous format. Your responses will remain confidential and will not be used for purposes other than those outlined above, or disclosed to any third party without your approval. You can withdraw from the survey at any time and have the right not to answer a particular question should you so wish.

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When do you generally first talk about MS progression with your patients?

At diagnosis

At initiation of treatment

At development of new symptoms

At treatment change

At major relapse

When my patients raise it with me

I do not talk to my patients about MS disease progression

What prompts you to talk about disease progression with your patients?

(Please choose one or more options)

My patient will raise the topic

I feel that talking about progression improves treatment adherence

I feel that talking about progression improves patient trust

I want my patients to avoid getting misinformation online

I think it is important to be honest with my patients

Other

I do not talk to my patients about MS disease progression

Why might discussions about disease progression sometimes NOT take place?

(Please choose one or more options)

Patients generally do not understand the concept of disease progression

Patients do not want to think about disease progression

Lack of time during appointments

I am waiting for my patient to raise the topic

Talking about disease progression is too upsetting for patients

Patients may not feel empowered to discuss disease progression

Other

Do you feel that your patients understand the concept of disease progression during discussions?

Yes

Not sure

I do not talk to my patients about MS disease progression

How do patients generally react to the first conversation about disease progression?
(Please choose up to 3 options)

Confident

Hopeful

Engaged

Overwhelmed

Worried

Frustrated

Angry

Frightened

Upset

Hopeless

Uninterested

Other

I do not talk to my patients about MS disease progression

What do you think are patients' biggest concerns about disease progression?

(Please choose one or more options)

How it will affect their work

How it will affect their family/partner/friends

Loss of freedom

Loss of sense of self

Increased disability

Inevitability of decline

Other

Validation message

When did you first talk about MS progression with your neurologist?

At diagnosis

At initiation of treatment

At development of new symptoms

At treatment change

At major relapse

I have not talked to my neurologist about MS disease progression

What prompts you to talk about disease progression with your neurologist?

(Please choose one or more options)

My neurologist will raise the topic

I feel that talking about progression improves my treatment adherence

I feel that talking about progression improves my relationship with neurologist

I want to avoid discovering this information online

I think it is important to be open about my MS

Other

I have not talked to my neurologist about MS disease progression

Why might discussions about disease progression sometimes NOT take place?

(Please choose one or more options)

I do not understand the concept of disease progression

I do not want to think about disease progression

I do not feel empowered to discuss disease progression

I am waiting for my neurologist to raise the topic

Talking about disease progression is too upsetting

Lack of time during appointments

Other

Do you feel that you understand the concept of disease progression during discussions?

Yes

Not sure

I have not talked to my neurologist about MS disease progression

How did you react to the first conversation with your neurologist about your disease progression? (Please choose up to 3 options)

Confident

Hopeful

Engaged

Overwhelmed

Worried

Frustrated

Angry

Frightened

Upset

Hopeless

Uninterested

Other

I have not talked to my neurologist about MS disease progression

What are your biggest concerns about disease progression?

(Please choose one or more options)

How it will affect my work

How it will affect my family/partner/friends

Inevitability of decline

Increased disability

Loss of sense of self

Loss of freedom

Other

Validation message

Question 1 of 6

Finish

Thank you for taking the
MS in the 21^st Century survey!

Visit our resources page to see how we are using our
data to create practical solutions to improve MS care.

Resources

Thank you for subscribing

MS in the 21^st Century is a Merck KGaA, Darmstadt, Germany initiative involving healthcare professionals and patient advocates. © Merck KGaA, Darmstadt, Germany.
US/NPR/1219/0610a January 2020

Be part of the data:

share your perspective below

Thank you for helping us to understand your perspective on these sometimes tricky conversations

Do you agree to participate in the survey on this basis?

I am from

I am a

When do you generally first talk about MS progression with your patients?

What prompts you to talk about disease progression with your patients?

(Please choose one or more options)

Why might discussions about disease progression sometimes NOT take place?

(Please choose one or more options)

Do you feel that your patients understand the concept of disease progression during discussions?

How do patients generally react to the first conversation about disease progression? (Please choose up to 3 options)

What do you think are patients' biggest concerns about disease progression?

(Please choose one or more options)

When did you first talk about MS progression with your neurologist?

What prompts you to talk about disease progression with your neurologist?

(Please choose one or more options)

Why might discussions about disease progression sometimes NOT take place?

(Please choose one or more options)

Do you feel that you understand the concept of disease progression during discussions?

How did you react to the first conversation with your neurologist about your disease progression? (Please choose up to 3 options)

What are your biggest concerns about disease progression?

(Please choose one or more options)

Thank you for taking the MS in the 21st Century survey!

Visit our resources page to see how we are using our data to create practical solutions to improve MS care.

How do patients generally react to the first conversation about disease progression?
(Please choose up to 3 options)

Thank you for taking the
MS in the 21^st Century survey!

Visit our resources page to see how we are using our
data to create practical solutions to improve MS care.