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Be part of the data:

share your perspective below

Thank you for helping us to understand your perspective on the influence of families and caregivers on patient
decision-making and appointment satisfaction

Your responses will be used by Merck KGaA, Darmstadt, Germany (the sponsoring pharmaceutical company) to inform the development of educational tools or publications. Your responses will be presented to the sponsor company in an aggregated and anonymous format. Your responses will remain confidential and will not be used for purposes other than those outlined above, or disclosed to any third party without your approval. You can withdraw from the survey at any time and have the right not to answer a particular question should you so wish.

Do you agree to participate in the survey on this basis?

Yes

I am from

I am a

Start

How old is the person with MS that you are related to or care for?

(Please select one)

0–17

18–24

25–39

40–49

50+

How many years has it been since they were diagnosed with MS?

(Please select one)

0–4 years

5–9 years

10–14 years

15–19 years

20+ years

Since they were first diagnosed, on average, how often has the person with MS taken you to their appointments?

(Please select one)

Almost always: >80% of the time

Often: 60–80% of the time

Sometimes: 40–60% of the time

Rarely: 20–40% of the time

Almost never: <20% of the time

I have never been to an appointment with them

What are, or have been, their reasons for taking you to their appointments?

(Please select all that apply)

To provide emotional support

To ask or answer questions on their behalf

To help them understand the information they are given

To record the information they are given

To help them make decisions about their treatment

To help me better understand MS so that I can provide better support to them

I have my own questions or concerns

To support with travel to and from the appointment

Other

I have never been to an appointment with them

When do you think it is beneficial for a person with MS to take a caregiver to their appointments?

(Please select all that apply)

Throughout the entire patient journey

When newly diagnosed

Following relapse or disability progression

When making treatment decisions

When discussing lifestyle changes or family planning

Only if the person with MS requires full-time care

It is the patient’s choice

Never

Please indicate whether you think the following are true, false, or no different when the person with MS takes you to their appointments:

(Please select all)

True

False

No different

The person with MS is more comfortable and confident in the appointment

They are more likely to remember and raise the topics they wanted to discuss

The consultation is more efficient in terms of keeping to time

They are able to better understand the information given to them

They are happier with the treatment and care decisions they make

I feel more involved and better informed about MS

I have never been to an appointment with them

To what extent do you think you influence decisions about the person with MS’ treatment and care?

(Please select one)

Not at all – they make all decisions about their treatment and care themselves

They make decisions about their treatment and care themselves but with consideration for how they think it will affect me

They make the final decision but they will ask for my opinion

They wouldn’t make any decision without my agreement

I make all decisions about their treatment and care for them

Which of the following would you find most useful for the person with MS’ clinic to provide you with?

(Please select all that apply)

Peer-to-peer support groups

Educational resources about MS

In-clinic educational sessions for patients and family members

Training on how to care for a person with MS

Access to the MS team via phone/email

Other

None of the above – we have sufficient support

Validation message

How old are you?

(Please select one)

0–17

18–24

25–39

40–49

50+

How many years has it been since you were diagnosed with MS?

(Please select one)

0–4 years

5–9 years

10–14 years

15–19 years

20+ years

Since you were first diagnosed, on average, how often have you taken a family member or caregiver to your appointments?

(Please select one)

Almost always: >80% of the time

Often: 60–80% of the time

Sometimes: 40–60% of the time

Rarely: 20–40% of the time

Almost never: <20% of the time

I have never taken anyone to an appointment with me

What are, or have been, your reasons for taking a caregiver to your appointments?

(Please select all that apply)

To provide emotional support

To ask or answer questions on my behalf

To help me understand the information I am given

To record the information I am given

To help me make decisions about my treatment

To help them better understand MS so that they can support me better

My caregiver has their own questions or concerns

To support with travel to and from the appointment

Other

I have never taken anyone to an appointment with me

When do you think it is beneficial to take a caregiver to your appointments?

(Please select all that apply)

Throughout the entire patient journey

When newly diagnosed

Following relapse or disability progression

When making treatment decisions

When discussing lifestyle changes or family planning

Only if I require full-time care

Never

Please indicate whether you think the following are true, false, or no different when you take a caregiver to your appointments:

(Please select all)

True

False

No different

I am more comfortable and confident in the appointment

I am more likely to remember and raise the topics I wanted to discuss

The consultation is more efficient in terms of keeping to time

I am able to better understand the information given to me

I am happier with the treatment and care decisions I make

My caregiver feels more involved and better informed about MS

I have never taken anyone to an appointment with me

To what extent do you think that your caregivers influence your decisions about your MS treatment and care?

(Please select one)

Not at all – I make all decisions about my treatment and care myself

I make decisions about my treatment and care myself but with consideration for how I think it will affect them

I make the final decision but I will ask for their opinions

I wouldn’t make any decision without their agreement

They make all decisions about my treatment and care for me

Which of the following do you think caregivers would find most useful for your clinic to provide?

(Please select all that apply)

Peer-to-peer support groups

Educational resources about MS

In-clinic educational sessions for patients and family members

Training on how to care for a person with MS

Access to the MS team via phone/email

Other

None of the above – we have sufficient support for this group

Validation message

How long have you been in clinical practice?

(Please select one)

0–4 years

5–9 years

10–19 years

20+ years

On average, how often do your MS patients bring a family member or caregiver to their appointments?

(Please select one)

Almost always: >80% of the time

Often: 60–80% of the time

Sometimes: 40–60% of the time

Rarely: 20–40% of the time

Almost never: <20% of the time

Why do you think your patients bring a caregiver to their appointments?

(Please select all that apply)

To offer emotional support

To ask or answer questions on the patient’s behalf

To help the patient understand the information they are given

To record the information they are given

To help the patient make decisions about their treatment

To help the caregiver better understand MS and provide better support to the patient

The caregiver has their own questions or concerns

To support with travel to and from the appointment

Other

When do you usually recommend that your patients bring a caregiver to their appointments?

(Please select all that apply)

Throughout the entire patient journey

When newly diagnosed

Following relapse or disability progression

When making treatment decisions

When discussing lifestyle changes or family planning

Only if they require full-time care

It is the patient’s choice

Never

Please indicate whether, in general, you think the following are true, false, or no different when your patients bring a caregiver to their appointments:

(Please select all)

True

False

No different

The patient is more comfortable and confident in the appointment

The patient is more likely to remember and raise the topics they wanted to discuss

The consultation is more efficient in terms of keeping to time

The patient is able to better understand the information I give them

The patient is more satisfied with the treatment and care decisions they make

The patient’s caregiver feels more involved and better informed about MS

To what extent do you think that caregivers influence patients’ decisions about their MS treatment and care?

(Please select one)

Not at all – patients make all decisions about their treatment and care themselves

Patients make decisions about their treatment and care themselves but with consideration for how they think it will affect their caregivers

Patients make the final decision themselves but they will ask for their caregivers' opinions

Patients wouldn’t make any decision without their caregivers' agreement

Their caregivers make all decisions about the patients’ treatment and care for them

Which of the following do you think caregivers would find most useful for your clinic to provide?

(Please select all that apply)

Peer-to-peer support groups

Educational resources about MS

In-clinic educational sessions for patients and family members

Training on how to care for a person with MS

Access to the MS team via phone/email

Other

None of the above – we have sufficient support for this group

Validation message

Question 1 of ?

Finish

Thank you for taking the
MS in the 21^st Century survey!

Visit our resources page to see how we are using our
data to create practical solutions to improve MS care.

Resources

Thank you for subscribing

MS in the 21^st Century is a Merck KGaA, Darmstadt, Germany initiative involving healthcare professionals and patient advocates. © Merck KGaA, Darmstadt, Germany.
US/NPR/1219/0610a January 2020

Be part of the data:

share your perspective below

Thank you for helping us to understand your perspective on the influence of families and caregivers on patient decision-making and appointment satisfaction

Do you agree to participate in the survey on this basis?

I am from

I am a

How old is the person with MS that you are related to or care for?

(Please select one)

How many years has it been since they were diagnosed with MS?

(Please select one)

Since they were first diagnosed, on average, how often has the person with MS taken you to their appointments?

(Please select one)

What are, or have been, their reasons for taking you to their appointments?

(Please select all that apply)

When do you think it is beneficial for a person with MS to take a caregiver to their appointments?

(Please select all that apply)

Please indicate whether you think the following are true, false, or no different when the person with MS takes you to their appointments:

(Please select all)

To what extent do you think you influence decisions about the person with MS’ treatment and care?

(Please select one)

Which of the following would you find most useful for the person with MS’ clinic to provide you with?

(Please select all that apply)

How old are you?

(Please select one)

How many years has it been since you were diagnosed with MS?

(Please select one)

Since you were first diagnosed, on average, how often have you taken a family member or caregiver to your appointments?

(Please select one)

What are, or have been, your reasons for taking a caregiver to your appointments?

(Please select all that apply)

When do you think it is beneficial to take a caregiver to your appointments?

(Please select all that apply)

Please indicate whether you think the following are true, false, or no different when you take a caregiver to your appointments:

(Please select all)

To what extent do you think that your caregivers influence your decisions about your MS treatment and care?

(Please select one)

Which of the following do you think caregivers would find most useful for your clinic to provide?

(Please select all that apply)

How long have you been in clinical practice?

(Please select one)

On average, how often do your MS patients bring a family member or caregiver to their appointments?

(Please select one)

Why do you think your patients bring a caregiver to their appointments?

(Please select all that apply)

When do you usually recommend that your patients bring a caregiver to their appointments?

(Please select all that apply)

Please indicate whether, in general, you think the following are true, false, or no different when your patients bring a caregiver to their appointments:

(Please select all)

To what extent do you think that caregivers influence patients’ decisions about their MS treatment and care?

(Please select one)

Which of the following do you think caregivers would find most useful for your clinic to provide?

(Please select all that apply)

Thank you for taking the MS in the 21st Century survey!

Visit our resources page to see how we are using our data to create practical solutions to improve MS care.

Thank you for helping us to understand your perspective on the influence of families and caregivers on patient
decision-making and appointment satisfaction

Thank you for taking the
MS in the 21^st Century survey!

Visit our resources page to see how we are using our
data to create practical solutions to improve MS care.