Understanding What People Need When They Are Diagnosed and Throughout Their MS Journey

This publication explores what needs people have at the time of their MS diagnosis, how to build trust between healthcare professionals and people with MS, and how to enable people with MS to have meaningful conversations with their care team about what impact symptoms are having on their lives. 

The MS21 team have done a lot of work around these issues, and the collected results have been organized into four main themes: 

    •  communication needs
    •  the need for meaningful information
    •  being able to find trusted resources
    •  offering emotional support

The results were then discussed at meetings, where the advisory group came up with suggestions for the best ways to address the needs across all four themes. These are explained further in the publication.  

As a result of this work, the MS21 team has updated the pre-appointment planner – myMS priorities – with new, specially-designed versions for:  

    •  newly-diagnosed people
    •  people further along in their MS journey.  

You can find them here. 

This publication highlights the important needs of people newly diagnosed with MS and gives practical solutions to support people through their MS journey.