Meet MS21's members
MS in the 21st Century (MS21) started in 2011 as a group of healthcare professionals with the aim to standardize multiple sclerosis (MS) care worldwide.
The importance of the patient voice was clear and, in 2016, people living with MS (PwMS) were invited to join the group.
The guiding principles adopted by MS21 are to:
- Improve communication between healthcare professionals and PwMS; and
- Develop practical educational resources based on real-world needs and data to support and drive this change.
- Conduct real-world evidence, clinical research and insights to further understand the unmet needs in MS care
Please see below for more information about MS21’s members.
Members
Birgit Bauer
Ms Bauer was diagnosed with MS in 2005, after which she started her life afresh. She says, ‘I’m the boss of my...
David Yeandle, OBE
David Yeandle was diagnosed with relapsing-remitting MS in 2010, having experienced symptoms up to 3 years prior to...
Jane Shanahan
Ms Shanahan was initially diagnosed with clinically isolated syndrome (CIS) in 2015, aged 50; a full diagnosis of MS...
Jocelyne Nouvet-Gire
Ms Nouvet-Gire has been living with MS for over 15 years in France. Before her diagnosis, she was a clerk of the...
Maija Pontaga
Ms Pontaga has been the Co-Chair of the Latvian Multiple Sclerosis Association since 2017 and a member of the EMSP...
Maria Paz Giambastiani
Ms Paz Giambastiani is a journalist and Argentine native, currently living and working in Spain. She has been living...
More support from MS21
MS shared experiences
Have you wondered whether other patients’ experiences are similar to yours? Read through patient stories and listen to audio podcasts on essential topics in MS.
Try MS support tools
Take control of your MS – access free tools to improve communication with your medical team.
Be part of the data
Do you have MS? Tell us about your experience in one of our quick surveys – you could help to shape future MS21 resources.